Slacking

So its been a while since I've last posted. I admit that I've been in a funk and have been slacking my blogger duties! It has been a combination of laziness and dread. However here I am! :)

C is doing really well today. Yesterday he had another one of his 'bouts of rage' as I call them. He refused to let the PT tech work with his hands to stretch them. Granted he had an IV in the left but the right one was fine. Sometimes I just want to tell them to give it up. In the long run though it wouldnt benefit C any if I told them that. I want C to have every oppurtunity available and not have any handicaps because of my indifference. Today I warned C that when we leave here that we will have to come back everyday to do therapy and it seemed to sink in. I keep reminding him that this isnt over just because we go home.

Speaking of home....Doc told me on monday that in a week we may be able to go home. The nurses have been whispering the same thing. However I got to have a chat with the Day Rehab coordinator and she let it slip that she was told we may get to leave this sat!!!!!!!!!!! The nurses here like to have surprises up their sleeves. (good ones) So maybe they were trying to throw me off their scent! Who knows....soon and very soon we will be home.

The main PT tech that we will be working with the most told me yesterday that C will have to wear his Jobst suit 23 hours a day for a whole YEAR! If we want really good results. This info I wasnt aware of. I'm thinking hold it.....C will be going to Kndgtn with this on. C's suit will consist of fingerless gloves, a short sleeved vest, long capris and his chin strap. Granted most of that you wont see except the gloves and chin piece, but kids these days are so much crueler than they were when I was in Kndgtn! Believe me I volunteer at school! She then said that they have a staff member that will come to the classroom and explain to the kids and teacher the ins and outs of burn patients and why C looks the way he does. Its going to be a big plus because C has Kendall to go with him. It has been confirmed that C will have full day, everday PT and OT plus he will see a counselor. It sounds exhausting to me but I will do whatever I need to now so C can have a better brighter future, despite his scars.

Marv is giving me a break tom afternoon. Im going home to stretch out in my extra long tub. Although I'm gonna miss my 2' x 2' corner shower with its pelting spray of water that smells of chlorine here! NOT! Talk about enjoying the smaller things in life that I so take for granted! If you have a semi comfortable bed at home and can sleep at least 6 hours consecutively a night, think of me when you wake in the morning. I will have to have back and hip surgery at 40, I guarantee it!!! Alright enough whining! Its wednesday the week is half over and we are nearing a weekend so enjoy it and be blessed! Until next time....
Amy