Updates

So I finally have a computer again and its lightning fast too!!! Cant beat that! So much has been going on the past week. I didnt even check to see when te last time was I posted....Oh well.



So obviously we didnt get to go home this past monday. Doc says on saturday we will be released. Marv and I will jump for joy in the parking lot if we get to go home then! C has been doing good. His donor sites have now all healed and still look red and pink but thats going to take some time to fully heal. The very first ones are still pink. Yesterday before I went home I was able to see C in the tub without any bandages. One of the nurses came in and asked if I wanted to see him all undone. I was stunned. I didnt know if I wanted to but am glad I did. C looks great! His grafts are a little grotesque looking in some places, but C thinks its cool that the graft on his left knee is so smooth with bumps! We have narrowed down why and when C gets so angry. The meds he gets for his baths are the culprits!ey just dont agree with him and do something to the emotional part of his brain! I can tell the minute they've worn off, C is a much happier child and doesnt talk back as much either.

I was also able to meet with a few of the PT and OT techs that we will be working with downstairs in day rehab. The facilities down there are really cool! If I was a kid and needed therapy I'd want to start right now! They even have a pool that has a floor that raises and lowers to help kids with various things! C will have his own bedroom for naps and to rest. We will be coming up here starting on monday and be here 5 days a week for at least 6 weeks! I will be driving back and forth everyday. We have the option of staying at the Ronald Mcdonald house but after being in the hospital and away from Marv and the other 2 boys for 8 weeks we just want to be home! The scheduling department was very accomadating to our needs for which we are thankful.

Marv was up here with C last nite and then this forenoon. Marv called to tell me that C got out of bed and walked to the recliner all by himself. C didnt even tell Marv that he wanted to get up he just did it! The burn unit is a 12 bed unit and C walked the whole circumference of it 2x today as well!!!! I am so proud of my little man! When C got back from his bath he was minus bandages around his torso and his one arm. All he has left wrapped are his left thigh and right calf. Progress is being made Thank you God! Hopefully by sat he wont have any bandages on, we will have to wait and see.

PT and OT have 2 areas of concern on C and those are his left knee and right wrist/thumb. His left knee has grafts all the way around, and C is holding it at a 35 degree angle which is comfortable for him but its not acceptable if he wants to walk normally again! The main PT tech gave him 2 leg braces to wear and C walks so much better when he has them on! He tolerates them well which is a blessing along with his Jobst chinstrap and gloves. I figure with those 2 invasive pieces that he has to wear then Jobst pants and a shirt shouldnt be anything he cant handle.

I have a lot more on my mind but for the sake of time and not having you fall asleep out of sheer boredom I will post again later. Until next time...
Amy