Christmas in April

C's room is overflowing with colorful gift bags, boxes, cards and the like! It looks like Santa was just here! Our church Grace Mennonite has been so gracious to us and so caring! We love you all so very much! They put together a get well box for C and put in some gifts for Tate and Kendall. Our small group dropped the box off last nite. Tate and Kendall have their stash at home and are allowed to open 2 gifts per day. C is allowed 2 also. We are making an exception though if he doesnt yell at that PT techs then he gets 1 more! :) Today the twins preschool teacher dropped off several more baskets and boxes filled with bags and presents for C and the boys. I find myself excited to see whats in each bag and box. (I love Christmas and birthdays!) So I will wait patiently till tomorrow! :) Thank you Bright Beginnings Preschool and Mrs Rennie for your thoughtfullness!!!

On Satudays the nurse on call has to collect C's urine for a 24 hour period and put it on ice so that the lab can analyze it and make sure that C is breaking down nutrients from his feeding tube. They also look to make sure he's not losing white blood cells and among other things. Thats was all fine and good by me, until this past saturday forenoon the tub techs were instructed to take his catheter out. I was like ok, how are you getting his pee now? The nurse said that I have to have him pee in a little bottle and tell the nurse right away so she can ice it down. (I'm still annoyed.....a little) C has been on a catheter since day 1, how do they expect a 5 yr old to automatically switch gears after being told to just let it fly. Not to mention the fact he had a tract infection! (I've had several tract infections and they are no walk in the park) I feel a little hot under my collar right now....deep breath ...ok. So about 4 hours later after asking C 110 times if he had to pee the nurse looked in his diaper and it was soaked. There goes all that effort. They then were gonna put the catheter back in during sundays tubbing. I am so glad they didnt. So we are one more tube free and closer to going home.

If you think of C during your morning coffee or commute to work please pray for him as thats around the time he has PT. The more they stretch everything now the more his muscle memory will come back and the quicker his release. It figures too that its the thing C hates the most! Some of its pain but a lot of its stubborness as well. On wednesday at noon C is scheduled for surgery, unless the Doc would happen to change something yet. I am excited and yet apprehensive. Marv has to work so I dont think he'll be here unless his schedule changes. Anyway I'm borrowing tomorrows troubles today. I think I need a good nights sleep! Until later, May you feel God's hand in your lives!
Amy