So my type A personality came out with flying colors today! C had a rough night and we had a new nurse, who was being shadowed by a nurse in training. To make matters worse C had his second most explosive bowel movement ever. (3am) This new nurse kept saying things to C about him not hurting and other things and several times I actually bit my tongue to keep from tearing her a new one! (pardon my french) So this morning I had a little chat with the head nurse who oversees these things and told her exactly how I felt. If these things were being said to me I could have (maybe) handled her better but you say stuff to my son whom you know nothing about, really rattles my cage! (btw she has never been married and has no kids) The nurse in question was spoken to. So I was thinking that we wont have the pleasure of having her company anymore, but v'iola, here she was again tonite. My dad thought maybe no one else ever had the guts to stand up to her and I'm the one to set her straight, but right now my plates full enough with out having to deal with an uncompassionate nurse!!!
C had his one major med changed because Doc thought it would maybe take care of his nausea and cut down on some itchiness. WRONG! I have never seen a more miserable child in all my life. He laid in his bed and was moaning and complaining like I've never seen anyone do. After saying something to 2 different nurses today and not being heard. I decided to really say something to the night shift nurse and she heard me. They switched C back to his original med and is sleeping ok right now. We'll have to see how the rest of the nite goes and tomorrow. I dont know if I was just wanting to see relief or if it actually seems like C is resting more comfortably. We will wait and see.
C also had his dressings changed today and came back without his hat, his whole left arm unbandaged and minus about 100 staples! His face graft was all cleaned up and the steri-strips were gone. C looks amazing! While I would love to give him a bath and clean out his ears I know that will come in due time. Everytime they have brought C back from his dressing change he would sleep his meds off for several hours and then wake up. Today he was sitting in my famous recliner, upright, looking like he owned the place! Of course he asked to watch his one of his all time favorite movies Toy Story (aka woody 1). Later a child life nurse came in and had little toy cars of course, and a wii console with 5 games. Not to mention that one of the games was a Mater racing game from the movie Cars. His face lit up and he was happy. He didnt want to bowl but was willing to tell me his 'tricks'. For those that dont know C is our Wii champion bowler at home and isnt afraid to tell the staff here! :0)
I wasnt planning on writing this much but it seems like when I get started the brain overflows. Sorry for the novel...till tomorrow!
Amy
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We just keep praying for you guys especially C! Way to stick up for your kid. I totally believe you have to be the voice for them at the hospital. Ella talks a lot about the boys and missing them at preschool and praying for C. It just seems preschool is missing something without them. Praying for healing and strength.
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